End of Life Option Act Response Conference
To promote thoughtful deliberation on topics that will be relevant to healthcare systems as they create patient- centered policies to respond to the End of Life Option Act in California.
We are neither promoting nor condemning aid in dying, but rather focusing on how to achieve the best possible care for seriously ill patients and their families when the End of Life Option Act goes into effect.
Many pragmatic and ethical concerns will need immediate attention, including:
Following the conference, a written report was prepared and distributed immediately, given the time urgency of preparing for rapid change. The report serves as a potential template or “points to consider” for health care organizations throughout the state drafting local policies. We anticipate that ongoing collaborations between ethics, palliative care and other allied health care professionals will be one result of the conference and its report; many believe that improved palliative care services was one outcome of the physician aid-in-dying legislation in Oregon.
End of Life Option Act Response Conference
Hosted by the University of California, San Francisco,
with support from the UC North Bioethics Collaboratory in the Health & Life Sciences
Westin Hotel, San Francisco Airport
Saturday, December 12, 2015
Funded by the California HealthCare Foundation
Organized by Elizabeth Dzeng, MD, PhD, MPH, Lindsay Forbes, Barbara Koenig, RN, PhD, Laura Petrillo, MD, and Ben Scribner, RN
Mission: To promote thoughtful deliberation on challenges faced by healthcare systems as they create patient-centered policies to respond to the End of Life Option Act in California.
9:00-9:15 am – Welcome and Introduction (Bayshore Room)
9:15-10:00 am – Lessons from Oregon and Washington (Bayshore Room)
10:00-10:45 am – Palliative Care Perspectives (Bayshore Room)
10:45-11:00 am – Break
11:00-11:45 am – Ethics (Bayshore Room)
11:45-12:30 am – Policy (Bayshore Room)
12:30-1:30 pm – Informal Networking Lunch, by Special Interest Group
Please pick up your box lunch. You may use this time to meet and network with other participants. Suggested groups are listed below. Look for signs to indicate location. You are also welcome to use this time to network independently.
Planning for research on outcomes and implications of the End of Life Option Act in California (Bayshore Room)
Clinical care perspectives (Oak Room)
Education of trainees, staff, and volunteers (Laurel Room)
Ethics committees/policy/law (Poplar Room)
Afternoon Breakout Sessions
Please choose Workshops #1 and #2 based upon your interest (note that they are repeated) and Workshop #3 based upon your practice setting.
1:30-2:00 pm – Workshop #1: Special topics (repeated at 2:05 PM)
Vulnerable populations (Poplar Room)
This workshop will discuss the potential vulnerability of those who have experienced unequal treatment in our health care system, including those who have been disadvantaged by disability, socioeconomic status, racial bias, or age. How do we ensure institutional responses to aid in dying that respect special circumstances and unique histories?
Cultural issues (Oak Room)
Given California’s cultural and linguistic diversity, how can we respond to aid in dying in a way that takes account of each patient and family’s unique heritage and background?
Religious and spiritual issues (Laurel Room)
This workshop will focus on how religious identity and beliefs influence aid in dying requests and decisions. What is the role of chaplaincy in aid in dying requests, and how can practitioners support the spiritual and/or religious needs of patients and families?
Mental health and well-being (Aspen Room)
This workshop will explore the psychological and emotional issues that may underlie a patient’s request for aid in dying and what potential supportive role psychiatric consultation services can play. We will also discuss how physicians’ own emotions and vulnerabilities influence the physician-patient interaction surrounding requests to hasten death.
Educating trainees (Hickory Hawthorn Room)
This workshop will review approaches to educating trainees about aid in dying, asking, how we can best support and teach trainees?
2:05-2:35 pm – Workshop #2: Special topics
Repeat of Workshop #1, sessions will be held in the same locations
2:35-2:45 pm – Break
2:45-3:45 pm – Workshop #3: Developing aid in dying policies at your institution
These workshops will explore the issues that health systems, organizations and practices will need to consider in crafting response policies, with focus on the particular needs of patients and providers in different healthcare settings.
Inpatient setting including hospitals, residential hospices, long-term care (Poplar Room)
Institutions with mandatory opt-out policies (Oak Room)
Outpatient setting including primary care, and specialist outpatient care, outpatient pharmacy (Laurel Room)
Home based systems including home hospice, home services (Aspen Room)
3:45-4:00 pm – Break
4:00-5:00 pm – Summary of Workshops and Closing Session (Bayshore Room)
5:00-7:00 pm – Reception (Hotel Lobby)